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Mothering Magazine Sponsored Chat with Cynthia Good Mojab, MS, IBCLC, RLC, CATSM is a clinical counselor, international board certified lactation consultant, author, researcher, and speaker. Through her private practice, LifeCircle Counseling and Consulting (LLC) she offers a blend of psychological and lactation services to women and health care providers, in person and by phone. In this chat, Cynthia will talk about grieving breastfeeding losses, including the loss of expected breastfeeding experiences, the loss of direct breastfeeding (exclusive pumping), and the complete loss of breastfeeding.
www.mothering.com
5/25/06

24 mamas in attendance


All Mothering Sponsored chats with Cynthia:
4/27/06  5/25/06  6/29/06  8/23/06  9/28/06  10/26/06

Webmama_Tina: ok, mamas, today our chat is with cynthia good mojab ....
Webmama_Tina: here's our info on the chat for today...
Webmama_Tina: Cynthia Good Mojab, MS, IBCLC, RLC, CATSM is a clinical counselor, international board certified lactation consultant, author, researcher, and speaker. Through her private practice, LifeCircle Counseling and Consulting (LLC) she offers a blend of psychological and lactation services to women and health care providers, in person and by phone. In this chat, Cynthia will talk about grieving breastfeeding losses, including the loss of expected breastfeeding experiences, the loss of direct breastfeeding (exclusive pumping), and the complete loss of breastfeeding.
Webmama_Tina: now cynthia, why don't you add anything else you'd like to add....i know that covers a lot, lol
ailbhe: Am I here?
Webmama_Tina: and mamas, start throwing out your question marks and i'll gather and start compiling the queue
Webmama_Tina: yes  ailbhe , glad you made it!
Webmama_Tina: Welcome to this week's Mothering Sponsored chat! This is a moderated chat. Please make sure you read and fully understand the Moderated Chat Instructions before participating in this chat. Instructions can be found here: http://www.mommychats.com/modrules.htm  ...A Friendly Reminder: Please do not post unless it is your turn to ask a question. If you have a question, please post a single ?" and you'll be added to the queue. Have your question ready when your name is called."
nursiemom: ?
Cynthia_Good_Mojab: Well, in addition to the information Tina just posted, I also answer questions about breastfeeding and maternal mental health for Mothering magazine as a member of their experts panel.
Cynthia_Good_Mojab: In my private practice and in my other roles, I have met many women who have experienced some kind of breastfeeding loss. They usually have had great difficulty finding understanding of and support for their grief.
Cynthia_Good_Mojab: I'm ready for questions any time, Tina.
Webmama_Tina: okey dokey!
Webmama_Tina: nursiemom you're up first!
nursiemom: I had to wean my youngest at 12.5 months due to severe medical issues.  That was 1.5 years ago, and it completely broke my heart.  The pain is less now, but still very real-- what is the best way to work through the pain from being forced to wean too early
Webmama_Tina: woah, can we go a little darker green? that's hard to read
Webmama_Tina: :)
nursiemom: Sorry-- I'll try again
Webmama_Tina: ah much better
Webmama_Tina: :)
nursiemom: I had to wean my youngest at 12.5 months due to severe medical issues.  That was 1.5 years ago, and it completely broke my heart.  The pain is a little less now, but still very real-- what is the best way to work through my grief from having to wean too so
nursiemom: too soon?
NaturalChildNaturalFamily: ?
earthgrlie: ?
Cynthia_Good_Mojab: I don't know that there is one way to work through the pain. Every woman's loss is different and every woman grieves differently. Some things that seems helpful for many mothers grieving weaning earlier than they had planned or expected to is to acknowledge the legitimacy of your loss to yourself, to find others who recognize that you have experienced a loss and who will not say things that, in effect, stop your grieving. Many people mean well, but when they say things like, At least you breastfed as long as you did" or "your child is healthy and fine, why are you so upset about this?" they are really communicating that it is not OK for you to be feeling what you are feeling. Some women find it helpful to write about their loss, in a journal, a poem, a song, etc. Some women find it helpful to create a drawing or a dance about their loss. Some women find it helpful to create a ceremony that acknowledges what
Cynthia_Good_Mojab: One of the most difficult things about the loss of breastfeeding is that it is not socially recognized--therefore, finding support can be very hard. It can be a very lonely experience to be grieving a breastfeeding loss.
Webmama_Tina: upcoming chatters:  NaturalChildNaturalFamily,  earthgrlie
Cynthia_Good_Mojab: Grief is always hard, but grieving alone is always harder. So finding some companionship, while difficult, can be very, very helpful.
Cynthia_Good_Mojab: Is there another question, Tina?
Webmama_Tina: NaturalChildNaturalFamily you're up
NaturalChildNaturalFamily: Thank you for doing this- It is wonderful- Have you found a link btwn PPD and the mom who doesn't nurse at all?
Webmama_Tina: upcoming chatters:  earthgrlie
NaturalChildNaturalFamily: with relation to grief
ailbhe: ?
arianamama: ?
Cynthia_Good_Mojab: You're very welcome. Most research studies show that the onset postpartum depression precedes weaning. Some studies show that depression follows weaning. However, postpartum depression may have begun as antenatal depression which was never diagnosed. Grief is often a contributing factor for depression, postpartum or not. In fact, it can be difficult to distinguish between grief and depression, because there is so much overlap. Certainly any mother experiencing grief or depression in the early days postpartum will have fewer emotional resources available to initiate and/or cope with breastfeeding challenges in a society in which so many barriers to breastfeeding already exist. Does this answer your question?
Webmama_Tina: upcoming chatters:  earthgrlie,  ailbhe
Cynthia_Good_Mojab: Mothers who are grieving the loss of an expected birth experience are certainly at an emotional disadvantage postpartum for initiating breastfeeding and/or to overcome breastfeeding challenges.
NaturalChildNaturalFamily: yes
Cynthia_Good_Mojab: Next question, please?
kjkissingford: ?
earthgrlie: My daughter is 4 months old, she has major neurological issues being diagnosed with Dandy Walker Malformation and Severe Hydrocephalus. She was in the NICU for about 2 months, Im proud to say she's been able to be on my breastmilk and not be supplemented."
Cynthia_Good_Mojab: That is not easy to accomplish in such a challenging context.
Webmama_Tina: upcoming chatters:  ailbhe,  arianamama,  kjkissingford
earthgrlie: She was born via C-section and everything around her birth was completly different. I was praying that we'd be able to breastfeed, but she has a g-tube
Cynthia_Good_Mojab: It sounds like you are grateful and proud that she has been exclusively breast milk fed and that you are grieving that you were and are not able to breastfeed her directly.
earthgrlie: I pump ( and HATE it!) but I try to make sure to have her try to latch on to my breast afterwards, just in hopes of her being able to breastfeed down the line. Do you have any other suggestions for building that bond and encouraging future feedings at the
earthgrlie: breast
Cynthia_Good_Mojab: Many women in your situation absolutely hate pumping: its sight, its sound, etc. It's a tangible reminder over and over again of their loss of direct breastfeeding.
earthgrlie: YES! My four year old still nurses, so that has helped a great deal. But I feel like my newborn is getting cheated
mamaste: ?
Cynthia_Good_Mojab: In one of my publications on congenital disorders in the nursling, I talk about the many aspects of the physical experience of breastfeeding: skin contact, hearing the mother's heartbeat and breathing, looking into each other's eyes. Mothers who are not able to directly breastfeed often feel more connected to their baby when they recreate these other aspects of breastfeeding.
Cynthia_Good_Mojab: Yes, you know what your four-year-old has experienced in your breastfeeding relationship, and you wish that your newborn could have that, too.
earthgrlie: Where could I find more info on this? Also we don't have the option of eye contact she's blind on top of everything else
Cynthia_Good_Mojab: When a newborn is blind, eye contact is not possible. Your baby will hear your breathing, your voice, your heartbeat and feel your touch during breastfeeding. Touch is so essential to the well-being and development of any newborn. All that cuddling, holding, rocking, patting, and carrying that mothers do may seem in our society like getting nothing done", but it has an incredibly powerful impact on our babies' development."
Cynthia_Good_Mojab: If you look at the publications page of my website, Ammawell, you can find two publications that I wrote on breastfeeding a child with a congenital disorder. One of them can be read in full on-line. If you visit the About" page of my private practice website ( www.lifecirclecc.com ) you'll find a link to my website, Ammawell. Then go to the breastfeeding section of my publications page."
Cynthia_Good_Mojab: Best wishes to you. Is there another question?
earthgrlie: I appreciate this chat, thank you! I'd be interested in reading more about this topic. I'll be letting my husband read what you wrote about getting nothing done. :-)
Webmama_Tina: ailbhe you're up
ailbhe: Thank.
Cynthia_Good_Mojab: Also, MOBI Motherhood, International is a new organization (though an email group has existed for some time) providing support and information for mothers struggling with breastfeeding or grieving its loss. They have a few email lists that can help mothers find support from mothers who really understand because they're going through some form of challenge, too. They're at: http://www.mobimotherhood.org
ailbhe: My toddler is just over two, and starting to self-wean.
Cynthia_Good_Mojab: You're welcome.
Webmama_Tina: upcoming chatters:  arianamama,  kjkissingford,  mamaste
ailbhe: I've been using breastfeeding to help live with the post-traumatic stress resulting from her birth.
ailbhe: I'm also 27 weeks pregnant.
ailbhe: I'm terrified of losing breastfeeding coming up to another birth, but it's not fair to her to use her as a crutch.
ailbhe: Is there a more useful way to think about the whole situation? I feel bereft - grieving for her birth and for the end of breastfeeding
ailbhe: (I've finished now)
Cynthia_Good_Mojab: It sounds like breastfeeding has brought you great comfort after your traumatic birth experience. Something that has gone right" after a birth which happened in an unexpected and frightening way."
ailbhe: Yes, that's right.
Cynthia_Good_Mojab: One of the tasks of grieving is finding new meaning in the aftermath of a loss. How do we live now that the loss has happened? What meaning does the loss have for us? This kind of grief work is so important, so hidden from others, and so challenging, it can be hard to know how to do it and what to make of our internal state. Finding ways to honor the emotions of our grief, and the importance of our grief work can help us feel that, although the situation is difficult, it is our healing in progress.
magdalene74: well, arent yall hard to find today LOL
magdalene74: woops, sorry.
Cynthia_Good_Mojab: Is there another question?
arianamama: How do those of us breastfeeding let those who weren't able to breastfeed like they wanted know that we are open to discuss their grief with them.
ailbhe: Oh well. Back to my regular therapist I guess.
Cynthia_Good_Mojab: That's a great question.
Cynthia_Good_Mojab: It depends on the context, of course, but communicating something like, Many women have struggled with breastfeeding. It's common for mothers to feel frustration, sadness, and anger related to breastfeeding...."
Webmama_Tina: upcoming chatters: kjkissingford, mamaste
arianamama: thank you
Cynthia_Good_Mojab: Mothers may be grieving the loss of breastfeeding with little support for that loss. This group/emaillist/session is a place that you can talk about any feelings you have about breastfeeding..."
Cynthia_Good_Mojab: You're welcome. Is there another question?
Webmama_Tina: upcoming chatters: kjkissingford, mamaste
Webmama_Tina: kjkissingford, you're up!
kjkissingford: Thank you for having this chat. I found deep isolation and despair when I was unable to breastfeed successfully. Part of that is due to the huge campaign that says breastfeeding is the best (makes us sad moms feel like we're not doing the best") ..."
Webmama_Tina: upcoming chatters: mamaste
kjkissingford: the lactation consultant we hired gave us the unwaivering perception that of course you'll be able to breastfeed, just do this, this and this" when it didn't work, she stopped calling for support even though she said she would. I felt like crap!"
Cynthia_Good_Mojab: You're welcome. It sounds like you were not able to find adequate support as you grieved the loss of breastfeeding....
Webmama_Tina: remember that if you have a question, just post a single question mark and i'll add you to the queue
kareen: ?
Cynthia_Good_Mojab: Part of your grief seems to have been that you knew the value of breastfeeding, and because you knew that, the pain of the loss of breastfeeding was great. You wanted to be able to give your baby the best" and were very sad that you could not give your baby breastfeeding...."
Cynthia_Good_Mojab: The support you received from the lactation consultant you hired did not meet your needs. You needed more follow-up, more problem solving, more emotional support for your struggle.
magdalene74: ?
Cynthia_Good_Mojab: Am I understanding your experience even a little?
kjkissingford: yes. i ended up with pretty severe postpartum depression/anxiety and I know it was this experience that pushed me over the edge. I've been to ppd support group, but I was the only one that failed" to breastfeed. I'd like to see more public awareness of th"
Webmama_Tina: upcoming chatters: mamaste,  kareen,  magdalene74
kjkissingford: this would be helpful. the judgement is SO deep when you're a natural" minded person! Thanks for your reflection!"
bicrim: are you all still here?
Webmama_Tina: bicrim yes...we're wrapping up our chat soon though
Webmama_Tina: 6 min left in this chat
bicrim: thanks
Webmama_Tina: At this time, the queue is full. Questions already in line will be asked, but we cannot take anymore today. Sorry for the inconvenience.
Cynthia_Good_Mojab: The magnitude of grief that women can experience in the aftermath of breastfeeding loss is poorly recognized--which leaves mothers struggling in isolation. It sounds like your loss of breastfeeding did not match your vision of yourself as a natural" person. It can be very difficult to reconcile this kind of mismatch--grief is, in part, the process of finding new definitions of self--of who we are.... It's not an easy process."
Cynthia_Good_Mojab: Next question, please?
Webmama_Tina: upcoming chatters: mamaste, kareen, magdalene74
mamaste: I lost a tremendous amt. of blood at birth. It took 2.5 mths. to fully breastfeed my baby. I still grieve the initial loss and all materials stress the importance of the initial bond that I missed.I am happy to be where we are now but I still feel the loss
Cynthia_Good_Mojab: Tina, I can stay a little longer--say until 10:15, maybe even 10:30...
Webmama_Tina: ok
bicrim: ?
Webmama_Tina: upcoming chatters: kareen, magdalene74,  bicrim
Cynthia_Good_Mojab: There is a great deal of emphasis on initial bonding. What is less recognized is how attachment is actually a long process. Mothers convey their love for their baby in ordinary ways, over and over again, day after day, month after month, and their babies learn moment by moment, yes, I am cared for, yes, my needs are met, yes, I am protected. Some moments aren't perfect" but it is the overall experience on which attachment is founded. You wanted to be able to provide attachment in the form of full breastfeeding. You are grieving the loss of that experience for your child and yourself. And you are glad that you are now able to express your love and attachment to your baby through full breastfeeding."
mamaste: yes, each day is better than the one before. thanks
Cynthia_Good_Mojab: Perfection in parenting is not possible, in part, because we would need a perfect world, with perfect support, and perfect information, provided by perfect family, friends, strangers and health care providers. The real world for most mothers involves less than perfect support, information, etc. We do the best we can and our children learn from us how to manage in an imperfect world.
Cynthia_Good_Mojab: You're welcome. Is there another question?
Webmama_Tina: upcoming chatters: kareen, magdalene74, bicrim
Webmama_Tina: kareen, you're up
kareen: I am still dealing with low milk volume with Baby #2 (7 months old ). I nursed baby #1 for 14 months supplementing.  Doing the same now. I thought my 2nd would be easier but ended up with a granuloma on my right pinky and mastitis in BOTH breasts.
Cynthia_Good_Mojab: You've been through a lot of challenges!
kareen: people think I'm nuts.  My husband has been very supportive.  I get embarrassed whipping out a bottle in public but also hard time nursing in public.  I think I'm over it all but as I write this, I guess I'm not.
Webmama_Tina: upcoming chatters: magdalene74, bicrim
Cynthia_Good_Mojab: People think your nuts because they think you should have given up" by now?"
kareen: yes
Cynthia_Good_Mojab: So, instead of support for hanging in there and creating the breastfeeding experience that is possible for you right now, you get some form of criticism.
kareen: yes, I think most feel guilty for not nursing themselves ?
Cynthia_Good_Mojab: It can be very hard for a woman who is knowledgeable about the importance of breastfeeding to give her baby a bottle in public. She may wonder Am I being judged?""
nasbrit: ?
Cynthia_Good_Mojab: I think less-than-supportive responses to a mother's breastfeeding challenges are often based in the grief of the person who is not being supportive. Many grandmothers of today's babies did not breastfeed--and did not have the information and support then that we do now. Which is not to say that contemporary support and information is always adequate!
Cynthia_Good_Mojab: Next question please?
magdalene74: I failed to breastfeed my two older sons, primarily, i believe, because of ignorance and lack of support.  This time around i placed myself in the midst of the toughest breastfeeding advocates i knew, to ensure that i would have the knowledge and support i
Webmama_Tina: sorry, i'm multitasking w/a baby on my lap  :)
Cynthia_Good_Mojab: :)
magdalene74: (sorry, paste doesnt seem to work.. lemme get this back..)
Webmama_Tina: upcoming chatters: bicrim
Webmama_Tina: do ctrl c
magdalene74: needed.  and i suceeded. now i am one of the advocates, the mentors...
Cynthia_Good_Mojab: So you have personal experience with the world of difference that support and information can make.
magdalene74: there was a question here heh.
magdalene74: so how do we find the line between support to help a woman suceed
magdalene74: and support for when she cant
Webmama_Tina: to copy content, click the copy content button in the row of buttons
Cynthia_Good_Mojab: That is a great question....
magdalene74: (no i had everything written up in word.. cant seem to get it pasted here heh.)
Webmama_Tina: you should be able to use the hot key....CTRL C
Webmama_Tina: sorry
Webmama_Tina: thats for copy
Webmama_Tina: CTRL V
Webmama_Tina: there
Webmama_Tina: migraine making my brain fuzzy
Cynthia_Good_Mojab: I think one important thing for someone trying to be supportive is to stay connected with the woman's experience. If we listen more than we talk, it can help a mother feel understood and spend" the emotion she needs to spend" which can help her figure out more clearly what she wants to do in that moment."
Webmama_Tina: CTRL V is paste
Cynthia_Good_Mojab: She is the one living her experience. We can't possibly know what is best" for her, because we are not living her experience."
Cynthia_Good_Mojab: Echoing back what she is saying...her thoughts, feelings, dreams, regrets, hopes...can help her process her experience. Sometimes we are up to here" with emotion, confusion, and frustration that unless we have a chance to get it out of us, we cannot make much use of support and information that might otherwise have helped us."
Cynthia_Good_Mojab: Is there another question?
Webmama_Tina: upcoming chatters: bicrim
bicrim: I have hypoplastic breasts and hypothyroid and, despite domperidone and pumping, have only managed a 75%supply. I still have trauma from those first weeks when he wasn't gaining and we didn't know why. I felt broken for not being able to feed my son.
Cynthia_Good_Mojab: I meant to write breastfeeding information and support...""
bicrim: sorry
Cynthia_Good_Mojab: No problem...
Webmama_Tina: upcoming chatters: bicrim nasbrit
nasbrit: I have recently weaned (two and a half months ago) my 3 year old and am finding myself feeling a lot of depression.  I am much more anxious about what he eats (or doesn't), I worry about not being able to protect him from the dangers of the world.
Cynthia_Good_Mojab: It sounds like those first weeks were very frightening and confusing for you--why isn't my son gaining?
bicrim: yeah, and breastfeeding was so important to me, formula wasn't an option
bicrim: we ended up with donor milk and an SNS
bicrim: but I still have PTSD-like symptoms from those first few weeks.
Webmama_Tina: nasbrit, you're after bicrim :)
Cynthia_Good_Mojab: You wish your breasts would have produced enough milk for your son. You really valued and continue to value breastfeeding. The whole experience of not being able to breastfeed him and have him gain well, and not knowing what was causing his poor weight gain, was traumatic for you
bicrim: yes
bicrim: and my therapist is wonderful, but he doesn't really get the breastfeeding thing.
Cynthia_Good_Mojab: How difficult it must be to seek support from a mental health care provider, but not have him understand something so important to you.
bicrim: it was frustrating.
bicrim: any advice about the flashbacks?
Cynthia_Good_Mojab: Sadly, many women have reported to me how difficult it has been for them to find a mental health care provider who understands breastfeeding, breastfeeding loss, traumatic childbirth, etc.
Cynthia_Good_Mojab: For chatters who may not know, flashbacks are intrusive memories of traumatic experiences. They can occur repeatedly and may feel like a tape is being replayed.
Cynthia_Good_Mojab: Flashbacks are a symptom of traumatic stress. Treatment for traumatic stress include medication and psychotherapy.
Cynthia_Good_Mojab: Does your therapist specialize in treating traumatic stress?
bicrim: actually, yes
bicrim: so more EMDR, then?
bicrim: lol
Webmama_Tina: nasbrit has our last question for today. :)
Cynthia_Good_Mojab: Ok, so you may find that your symptoms lessen as you continue treatment, and yes, EMDR, is one form of psychotherapy for traumatic stress. Is there a mental health care provider in your area who specializes in traumatic stress--AND understands breastfeeding?
bicrim: I've been with this one for years, it will be OK, it's nice to talk to someone who gets it, though.
nasbrit: Two months ago I weaned my 3 year old and I am still feeling pretty depressed about it.  I feel like I can't protect him enough anymore, etc.
Cynthia_Good_Mojab: Best wishes on your continued healing, bicrim.
bicrim: thanks
Cynthia_Good_Mojab: You feel like breastfeeding helped you protect your son?
nasbrit: Yes!  And obviously more than just the attachment and antibodies.  I am having nightmares several times a week about horrible things happening to him
Cynthia_Good_Mojab: So, breastfeeding felt like a way to create a safe haven for him and now you are anxious about harm coming to him.
nasbrit: He still ocassionally asks to nurse when he's really upset, but I've started fertility meds and can't risk passing that through.  It's heartbreaking to me when he sobs please say yes to num-nums""
nasbrit: I wonder that I am harming him?
Cynthia_Good_Mojab: It sounds like you are torn between undergoing fertility treatment so that you can have another child and wanting to meet the needs of the child you have. You wonder if he will be harmed by your saying no to his asking to nurse.
Cynthia_Good_Mojab: Has anyone provided you with information from the current (2006) edition of Medications and Mothers Milk by Tom Hale? And, when did you begin fertility treatments? Women can have strong side effects of fertility medications on their mood (depression, anxiety...).
nasbrit: I try to hug and cuddle him when I say no, but he can get so sad.  I don't know how else to make him and me feel better
nasbrit: Started just a little bit ago.  Was also wondering if the change of hormones with weaning could affect my mood.
Cynthia_Good_Mojab: Sometimes it can help a child to things that acknowledge their sorrow...something like, You feel very sad about not being able to have num-nums. You really miss it. You really wish Mama would say 'yes'." And, if "But, Mama can't give you num-nums because she has to take a medicine that might not be good for you to have." You can say that some time later, but when children just get to experience acknowledgement of their feelings in that moment, it can really be powerful."
Cynthia_Good_Mojab: When weaning is abrupt, there seems to be more risk of negative mood resulting from weaning. This is not a well-researched or understood area, but there are hormonal changes associated with weaning that seem related to mood. It's possible that several things are impacting your mood--your own feelings about weaning, your experience of your son's feelings, and side effects from the fertility treatment.
Cynthia_Good_Mojab: Mothering involves a full spectrum of experience. And, mothers, understandably, experience a full spectrum of emotion in response to that experience.
Cynthia_Good_Mojab: Tina, I'm going to need to go soon....
Webmama_Tina: yes that was our last question
Webmama_Tina: i was just waiting for that to be completed. :)
Cynthia_Good_Mojab: Me, too. : )
nasbrit: It's hard at times to feel this deeply.  Thank you for your understanding.
Webmama_Tina: thank you SO much! nursiemom wanted me to express her deepest thanks...she had to go
Webmama_Tina: but she wanted you to know how wonderful this was for her
Webmama_Tina: i will try to get the transcripts up sometime in the next week
Webmama_Tina: and thanks again, cynthia, for another wonderful chat!
Webmama_Tina: and thank you to all you wonderful mamas for joining us!
Cynthia_Good_Mojab: You're very welcome, nasbrit. Best wishes on your journey. It might be wise to check in with your health care provider regarding your mood.
Webmama_Tina: y'all are welcome to stick around and chat amongst yourselves as long as you like...all i ask is you move to another chat room so that i can close this one. :)
Webmama_Tina: it might be nice for those of you with similar experiences to stay and chat casually with each other. :)
magdalene74: nasbrit, if you will tell me what fertility drugs you are on, i will try to look them up for you, or find someone who can... you may be able to continue nursing your son until you are both ready to wean.. it doesnt sound to me like either of you are ready
magdalene74: for that quite yet..
magdalene74: oops, sorry
Cynthia_Good_Mojab: You're welcome. I'm glad to have been here.
 

 

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