|
12:07:10 |
Webmama_Tina |
so cynthia, it looks like just you and
me for the moment |
|
12:07:17 |
Cynthia_Good_Mojab |
So, how are you? |
|
12:07:23 |
Webmama_Tina |
good, you? :) |
|
12:07:42 |
Webmama_Tina |
for chronic disorders and such, what
kinds of things were you thinking about? |
|
12:07:54 |
Webmama_Tina |
i don't have any children with anything
other than recently diagnosed eczema |
|
12:07:55 |
Webmama_Tina |
lol |
|
12:08:13 |
Webmama_Tina |
and unless you count moodiness as a
chronic disorder of my nearly 6yr old,
LOL! |
|
12:09:15 |
Cynthia_Good_Mojab |
Congenital disorders and chronic health
issues is a very broad topic. When
children are born with a health or
developmental issue, it's labeled
congenital" (present from birth)." |
|
12:09:34 |
Cynthia_Good_Mojab |
Chronic health issues can result from
congenital disorders or develop after
birth. |
|
12:10:21 |
Cynthia_Good_Mojab |
Congenital disorders include Down's
syndrome, cleft lip and palate, hearing
impairment from birth, club foot, etc. |
|
12:10:57 |
Webmama_Tina |
oh i see |
|
12:11:37 |
Webmama_Tina |
yeah i don't have anything like that
here...well my dd had a hemangioma at
birth...but its mostly gone now...not
ever really been an issue either |
|
12:11:52 |
Cynthia_Good_Mojab |
Chronic health issues can develop after
an accident or through exposure to
environmental toxins (e.g., lead,
mercury). Allergies certainly fall in
the category of chronic health issues,
so eczema (which is often related to
allergies) would count. |
|
12:12:13 |
Webmama_Tina |
oh i see...yeah i am trying to figure
out if he really does have eczema... |
|
12:12:17 |
Cynthia_Good_Mojab |
So would the Asperberger spectrum of
disorders, including autism. |
|
12:12:20 |
Webmama_Tina |
i'm not entirely convinced |
|
12:12:35 |
Webmama_Tina |
its not all dry and scaley |
|
12:12:40 |
Webmama_Tina |
more like a rash |
|
12:14:02 |
Cynthia_Good_Mojab |
Skin problems can be really hard to
figure out. And, mothers who are coping
with children's allergies can find the
process of figuring out how to live life
without eating dairy, wheat, corn,
....whatever the offending food is...can
need support. |
|
12:14:44 |
Cynthia_Good_Mojab |
Tina, do we have any Boards over on
Mothering that address these kinds of
issues? I wonder if we can rustle up
anyone who might be interested in
talking about this.... |
|
12:15:23 |
Webmama_Tina |
hm, dunno |
|
12:15:29 |
Webmama_Tina |
i don't post on mothering very often |
|
12:15:51 |
Webmama_Tina |
yeah i'm being told by friends that i
should try to eliminate dairy from my
diet...that is SOOOO hard! |
|
12:16:01 |
Webmama_Tina |
not to hard to take it out of his, cuz
he doesn't eat a whole lot yet |
|
12:16:05 |
Webmama_Tina |
mostly nursing still |
|
12:16:10 |
Webmama_Tina |
but wow, if i can't eat cheese! |
|
12:16:14 |
Webmama_Tina |
:( |
|
12:20:54 |
Webmama_Tina |
i posted on amity |
|
12:20:56 |
Webmama_Tina |
are you posting on mothering? |
|
12:21:42 |
Cynthia_Good_Mojab |
I just posted on Mothering |
|
12:21:57 |
Webmama_Tina |
okey dokey |
|
12:22:04 |
Webmama_Tina |
LC22 you back yet? |
|
12:22:11 |
Webmama_Tina |
guess not |
|
12:22:14 |
Webmama_Tina |
hmmm |
|
12:22:17 |
Webmama_Tina |
welllll.... |
|
12:22:18 |
Webmama_Tina |
LOL |
|
12:22:24 |
Webmama_Tina |
give it some time to see if anyone shows
i guess |
|
12:22:39 |
Webmama_Tina |
so you're area of expertise is all
things children and babies, eh? |
|
12:22:40 |
Cynthia_Good_Mojab |
Well, Tina, an option is also to conduct
this like an interview--that way there's
a transcript on this topic. |
|
12:23:43 |
Webmama_Tina |
that's true |
|
12:23:46 |
Webmama_Tina |
:) |
|
12:23:52 |
mybabyandmore |
hello sorry I'm late |
|
12:23:56 |
mybabyandmore |
nap time |
|
12:24:11 |
Webmama_Tina |
hiya! |
|
12:24:14 |
Webmama_Tina |
i'm glad you made it! |
|
12:24:16 |
Cynthia_Good_Mojab |
Welcome! |
|
12:24:35 |
Webmama_Tina |
mybabyandmore do you have a child with
congenital disorder or chronic health
problems? |
|
12:25:35 |
mybabyandmore |
no |
|
12:25:58 |
mybabyandmore |
actually ractive airway disease |
|
12:26:22 |
Cynthia_Good_Mojab |
What kind of symptoms does your child
have? |
|
12:26:33 |
mybabyandmore |
wheezing coughing |
|
12:26:52 |
mybabyandmore |
every time they get cold it goes right
to their chest |
|
12:26:56 |
mybabyandmore |
colds |
|
12:27:48 |
Cynthia_Good_Mojab |
How much of your time are you spending
trying to keep him/her from getting
those colds? I bet that's tough to
accomplish! |
|
12:27:57 |
Webmama_Tina |
welcome thefragile7393 |
|
12:28:18 |
thefragile7393 |
Thank you :-) |
|
12:28:33 |
Webmama_Tina |
fragile...do you have a child with
health issues? |
|
12:28:57 |
mybabyandmore |
i honestly don't |
|
12:29:05 |
mybabyandmore |
i breastfeed my 19 month old |
|
12:29:20 |
mybabyandmore |
my 3 yr old has seemed to grow out of it |
|
12:29:26 |
mybabyandmore |
mostly |
|
12:30:11 |
thefragile7393 |
honestly no....I'm just here learning
and listening |
|
12:30:19 |
Cynthia_Good_Mojab |
So you've been mothering two children
with reactive airway disease...although
one seems to be doing better now. |
|
12:30:23 |
thefragile7393 |
he's a healthy little dude in spite of
me |
|
12:30:34 |
mybabyandmore |
y |
|
12:30:47 |
mybabyandmore |
they both get nebulizers prn |
|
12:30:59 |
mybabyandmore |
the baby more often |
|
12:31:27 |
mybabyandmore |
with albuterol |
|
12:31:49 |
Cynthia_Good_Mojab |
Do you feel like an old pro" at this
point, taking things in stride, or is it
a daily challenge, or a little of both
or ??" |
|
12:32:47 |
Cynthia_Good_Mojab |
Thanks for joining us to listen in, the
fragile7393. Do you have friends/family
coping with parenting children with
congenital disorders or chronic health
issues? |
|
12:33:01 |
mybabyandmore |
when she is sick i feel challenged. I
had asthma as a kid and I hear her and
know how horrible it feels it breaks my
heart |
|
12:33:35 |
Cynthia_Good_Mojab |
You can really empathize with how hard
breathing difficulties can be. They can
be really frightening since breathing is
so important... |
|
12:33:38 |
mybabyandmore |
it hurt me to hear her trying tobreathe |
|
12:33:40 |
thefragile7393 |
mmm....well my SIL has a son born with
severe Spina Bifida.....and of course
the hospital screwed up her
breastfeeding by giving pacis and
bottles...so she's exclusively pumping
for him |
|
12:34:25 |
thefragile7393 |
I've tried to help her on that
aspect....she's trying to bf more...it's
been an uphill battle |
|
12:35:20 |
Cynthia_Good_Mojab |
Tina, now that we have a few Chat
participants, do you want to start
taking questions? |
|
12:35:25 |
mybabyandmore |
WOW that is admirable though
thefragile7393 expumping takes
dedication |
|
12:36:52 |
thefragile7393 |
I dunno if she throws in formula here
and there.....I don't talk get to talk
with her much since she usually prefers
to talk with my husband, her brother |
|
12:37:07 |
thefragile7393 |
but the last I heard she was doing the
exclusive pumping thing..... |
|
12:37:21 |
thefragile7393 |
she dosn't work so she has the time" so
to speak, even with an older daughter" |
|
12:37:49 |
Cynthia_Good_Mojab |
I just came back after being
disconnected from the Chat. I'm not sure
what I missed...I was only gone a
moment, but one of my responses wasn't
sent, I think. |
|
12:38:32 |
Cynthia_Good_Mojab |
Tina, are you there? |
|
12:39:36 |
Cynthia_Good_Mojab |
I think Tina is busy mothering at the
moment! |
|
12:40:21 |
Webmama_Tina |
sorry! |
|
12:40:23 |
Webmama_Tina |
nak'n |
|
12:40:24 |
Cynthia_Good_Mojab |
No problem! |
|
12:40:33 |
Webmama_Tina |
don't know what i pushed |
|
12:40:44 |
Webmama_Tina |
i logged myself out somehow |
|
12:40:52 |
Webmama_Tina |
lol |
|
12:41:00 |
Cynthia_Good_Mojab |
I pushed send" earlier and was
disconnected. So, it might be a glitch
with the system, not you!" |
|
12:41:14 |
Webmama_Tina |
maybe |
|
12:41:36 |
Cynthia_Good_Mojab |
Does anyone have a question about
today's topic of coping with the
challenges of mothering children born
with a congenital disorder or
experiencing chronic health issues? |
|
12:42:23 |
Cynthia_Good_Mojab |
Or a comment? Or wisdom to share? |
|
12:43:48 |
Cynthia_Good_Mojab |
While I see if anyone has an answer to
that question, I want to share a few
resources.... |
|
12:44:20 |
Webmama_Tina |
i wonder if there might be another topic
that the mamas might want to discuss? |
|
12:44:36 |
Cynthia_Good_Mojab |
I'm open! |
|
12:44:56 |
Webmama_Tina |
resources are good..share away! |
|
12:45:09 |
Webmama_Tina |
i've got a squirming nursing baby on my
hands here...trying to keep him happy |
|
12:47:32 |
Cynthia_Good_Mojab |
I wanted to copy and paste, Tina. Is
that possible? |
|
12:47:54 |
Webmama_Tina |
yes |
|
12:48:02 |
Webmama_Tina |
you have to click the copy content
button first |
|
12:48:08 |
Webmama_Tina |
see the button with 2 pieces of paper? |
|
12:48:29 |
Webmama_Tina |
oh wait |
|
12:48:36 |
Webmama_Tina |
do you mean you want to copy stuff from
elsewhere? |
|
12:48:42 |
Cynthia_Good_Mojab |
I wanted to copy a url from another
place and paste it into the text editor
here. |
|
12:48:43 |
Webmama_Tina |
cuz that's if you want to copy stuff in
the chat |
|
12:48:52 |
Webmama_Tina |
oh yes, just use CTRL V |
|
12:48:55 |
Webmama_Tina |
that will paste it |
|
12:49:38 |
Webmama_Tina |
L C to copy |
